Member Notices

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Your chance to be on TV (February 2015)

Imtiaz Naqvi from Bradford Association of Visually Impaired People hosts a television programme which focuses on health and social care issues for South Asian people.


The programme is broadcast live from Bradford on Asian Chanel 800 and reaches people in over 150 countries including UK.


His show focuses on health risks that leads to disability and as well as general disability issues such as blindness, deafness, mental health, dyslexia, arthritis, and stroke. 


Imtiaz is looking for people to appear on his programme to help

promote positive health messages and increase awareness of health and disability issues, particularly those that impact on the South Asian community. 


If you know of anyone with a disability from a BME background who would like to share their experiences then please can you contact him as below.



Telephone          07889 254236.

AWAAZ FM Newsletters (November 2014)


Awaaz FM are one of SpeakOut’s longest serving members. They produce regular newsletters which you can down load from here.


You can download their latest newsletter here.


You can also download past newsletters below. Click on these links to view some of their videos. What is Awaaz? Awaaz History.


December 2014

November 2014

October 2014

September 2014

August 2014

July 2014

June 2014

May 2014

April 2014

February 2014

December 2013

November 2103

October 2013

September 2013

August 2013

July 2013

June 2013

May 2013

April 2013

March 2013

February 2013

January 2013

December 2012

November 2012

October 2012

September 2012

July 2012


The National Council For Palliative Care: National Review of Choice in End of Life Care (August 2014)


The National Council for Palliative Care are members of SpeakOut and are asking members to feed in to a national review of choice in end of life care. Almost half a million people die in England each year and yet many die without having had the opportunity to properly discuss their choices and wishes about how and where they die. The review will help to identify the kind of end of life care that people want and how it might best be offered.


You might want to get involved by responding the online survey at or you might want to talk to a public meeting in London on 4th September (see or Leeds on 24th September (see


General information about the consultation can be found here:


You can also contact Joanna Black ,Community Involvement Manager at : The National Council for Palliative Care, The Fitzpatrick Building, 188-194 York Way, London, N7 9AS

T: 020 7697 1520



Speakup Self Advocacy: The Friendly Information Company (July 2014)


Started by Speakup Self Advocacy, the Friendly Information Company is a Social Enterprise run by and for people with disabilities and/or autism, mental health problems, or from vulnerable and disadvantaged groups of all ages. Their aim is to help people and organisation to make their information accessible to all. Making information accessible helps disabled people to be in control and included, and will help organisation meet their disability access requirements. They have made some fantastic videos about coping with a crisis and mate crime that you can view by clicking on the links above.

National Council for Palliative Care - End of Life Care Review (October 2013)

Following the recent review of the so-called Liverpool Care Pathway, The National Council for Palliative Care are arranging a series of workshops to discuss what should be done to improve end of life care. Workshops are taking place nationally. You can book a placed here.

News from the National Council for Palliative Care (September 2013)

The National Council for Palliative Care and Dying Matters are very grateful to members of the SpeakOut network for getting in touch about projects we’ve been working on. We would like to share some examples of how we have used what you have done below:


What do the terms ‘seldom heard’ and ‘hard to reach’ mean to you? We shared these as an introduction to a conference entitled ‘Reaching the whole community’ You can read them on our website:


How to improve support and involvement of carers when the person they’re caring for is in hospital near the end of life. We’re running a project to improve involvement and support for carers and are keen to hear people’s personal experiences, especially in relation to dementia. If you have a story to share, please let us know.


What should hospice care look like in the future? Some of you attended the help the hospices event in July to share your views. To read more, visit and click on the link on the top right hand side (a recent event).


Difficult Conversations for heart failure. We’ve been speaking to people affected by heart failure (patients, carers and former carers) in order to improve palliative and end of life care. The guide aims support people affected by heart failure to speak more openly about their wishes, concerns and hopes for the future, in particular the end of life. We had a webex conference with Pumping Marvellous – the only national charity dedicated to supporting people affected by heart failure. We were extremely grateful to Nick Hartsthorne-Evans for getting in touch. It will be launched early next year. We’ll keep you posted.


A big thank you for sharing your experiences and helping us to get a clearer picture of the kind of care people are receiving at the end of their life.


Contact - Jo Black, Community Involvement Manager, The National Council for Palliative Care and Dying Matters. 020 7697 1520.

News From Age UK Suffolk (September 2013)

Age UK Suffolk are part of the Partnership with Older people in Suffolk (POPS). They recently held 3 forums entitled ‘Living Today, Remembering Yesterday’, the focus of which was to raise awareness and understanding of dementia and to discuss how Suffolk communities can enable people with dementia to remain independent and active. You can read the report here. (The report should appear in your downloads folder). A second report, Expecting the Unexpected’ explores older peoples experiences of managing life changing events. For further information, contact Donna Reeve at

Thurrock Over Fifties Forum (TOFF’s) Launch New Campaign Against Cold Calling (September 2013)


Cold calling can be annoying for any of - but for the elderly or the vulnerable it be particularly distressing. TOFFs have launched a new campaign against it - you can see it here.

Your Chance To Get Involved in Manchester Pride (July 2013)

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MANCHESTER PRIDE August Bank Holiday weekend 24th 25th August 2013


The Equality Network at CQC will be hosting a stand at the Manchester Pride to raise awareness about CQC and regulation and to highlight the importance of LGBT issues in health and care services. CQC volunteers will run the stall over the 4 days of the event and we would like to extend an invitation to join us to SpeakOut groups – if you know anyone who would like to get involved and can commit to working with CQC staff (Inspectors, assessors and others) during one of the days please ask them to contact Jane Golden asap (contact details below).


We will supply volunteers with an individual day pass and will agree and reimburse reasonable travel costs and if you have to travel a long way we may be able to pay accommodation costs – there could also be opportunities to help on the first and last days (23rd and 26th) - this will involve putting the stall together and dismantling.


Please get in touch to discuss further or leave a message 01535 658971


For more information about Manchester Pride see

The National Council For Palliative Care - Appeal For Help (July 2013)


The National Council for Palliative Care (NCPC) is helping to organise an event to discuss the future of hospice care in London on Tuesday 23rd July. The event will run from 11-3pm at Friends House, Euston, London to discuss the following questions (and others):


· What should hospices offer in the future?

· What type of care must not be changed, and what could be changed?

· Could people like you help provide care in the future and would you want to?

· How do you think people like you can work better with professionals to get the type of

care you want and need?


Travel expenses will be paid and NCPC can support people with travel arrangements. Further details will follow, but in the meantime please contact either Joanna Black ( or to reserve your place. Patients, carers and family members are welcome, so feel free to pass it on to others who would like to share their experiences too.


If you can’t attend or would prefer not to, there are other ways of feeding in your thoughts and comments. Contact Joanna to find out how.


For twitter/facebook users please follow @HospiceFuture and ‘like’ The Commission:Talk to us about Hospice Care

The National Council For Palliative Care - Appeal For Help (June 2013)


Do you have heart failure or know someone who does? If so, we’d really appreciate your help with a project we’re running to improve services. Please contact Jo Black, Community Involvement Manager, the National Council for Palliative Care 020 697 1520 and visit for more information.


The National Council for Palliative Care

The Fitzpatrick Building

188-194 York Way

London, N7 9AS

OLGA Activities (June 2013)


OLGA run weekly eat and greet activities for older lesbian, gay, bisexual and trans people. Contact Mary on 07929 465 044 for further information.

The National Council For Palliative Care Conference (May 2013)


Notes from their Reaching The Whole Community? End of life care for all who need it workshops are available here. You can also see participants views about what the terms ‘hard to reach’ and ‘seldom heard’ mean.

Waltham Forrest Mencap (May 2013)


Waltham Forrest Mencap have been affiliated to the Royal Mencap Society for 20 years but as of April 2013 has taken on a new name, logo and governance structure. Waltham Forrest Mencap is now Learning Disability Experience (LDX). LDX continues to be committed to deliver the best services to people, with learning disabilities, their families and carers.

OLGA Training (March 2013)


OLGA work to support older lesbian, gay, bisexual and transgendered people. They have organised an Equality and Diversity Training workshop for Wednesday 22nd May at 1.30pm - 4.30pm at the Falsgrave Community Resource Centre, Seamer Road, Scarborough. The workshop will specifically look at health and social care issues for gay and trans people.


To book a FREE place contact OLGA on: 07929 465044 or email:

The BHA Publish New Health Inequalities Magazine (November 2012)


The BHA have just published the second edition of Health Equalities, the twice-yearly magazine that focuses on tackling health inequalities. As well as providing hard-hitting evidence, the magazine also offers practical suggestions to commissioners and providers of health and care services.


The current issue focuses on the impact of austerity on the health and lives of patients, families and communities but also covers a wider range of issues. A PDF version of the magazine can be viewed by following this link.


If you would like a printed copy please contact the BHA at


The BHA would welcome comments on the current issue and suggestions for areas to cover in our next issue, to be published in April 2013. Please feel free to forward the magazine on to colleagues.

Surrey Coalition of Disabled People have just published their annual report (November 2012)


You can download a copy here

Brent Advocacy Concerns (November 2012)


Brent Advocacy Concerns regretfully announces the redundancy of its coordinator, Richard Downes, due to the loss of funding from the local council.


We are trying our best to survive and keep the organisation running so that we can continue to participate in SpeakOut - to which Richard remains one of our representatives.


Richard is also busy previewing, reviewing and interviewing as a New Voices Writer with Disability Arts Online through which he gains the odd commission. He remains involved with Kate Mercer Training where he co-trains in the National Advocacy Qualification and provides his expertise as a disabled person in a Service User Role. He remains available as a freelance Disability Equality Trainer.


Richard can now be contacted on his personal email address at or on his twitter account @socialmodelling

One Voice 4 Travellers are co-hosting a fun and information day for travellers in Suffolk on 1st December 2012 (November 2012)


Click here for further details.

The Black and Minority Ethnic Elders Forum, Leicester (October 2012)


The Black and minority ethnic elders forum, Leicester, was originally developed as part of a wider regional project in 2003.


The BME elders forum aims to support its members to maintain and improve the quality of life and dignity of Black and minority ethnic elders through representation and engagement. Age UK Leicester Shire and Rutland provide administrative support to the Forum. The forum is unique in its diverse membership and includes representatives from the Chinese, Irish, Polish, South Asian and African Caribbean communities.


Its recent activities include: participating in discussions relating to the provision of local health and social care services for older people; partnership working with Leicester City Council, Action Deafness, Loros, Stroke Awareness, the Pension Service and the Care Quality Commission on a rage of consultation and information projects services for hard to reach groups; and providing representation on the Service Equality Panel, University Hospital, Leicester.


If you are a service provider, the forum can help you to:

  • Access a diverse group of representatives from BME Elders groups
  • Develop a clearer picture of the needs of BME Elders
  • Engage with and involve BME Elders in planning and decision making processes

Please contact Saeed Malek using the details below for any further information.

Saeed Malek

Age UK Leicester Shire & Rutland

Phone: 0116 2220559


Fundraising for Syrian Refugees (Sept 2012)


Karnail Sodhi and colleagues from the Asian Disabled Association are planning to raise funds to help children fleeing the war in Syria. They will be climbing Ben Nevis on 20th October and the money raised will be used to help with their medical costs.

Karnail is appealing for sponsorship. If you would like to make a donation, however small, it would be greatly appreciated.

Please contact Karnail directly either by email or telephone on 07576340520.

Thank you. And good luck Karnail!!!

Age UK Suffolk are working to raise awareness of Dementia (Sept 2012)


Donna Reeve at Age UK in Suffolk has been working hard to raise awareness of dementia and looking at how communities can support people with dementia to enable them to remain independent. You can view the outcomes from their work here.

If you would like more information, you can contact Donna directly.

Donna Reeve, POPs Co-ordinator, Saxon House, 7 Hillside Road, Bury St Edmunds, IP32 7EA.

Telephone: 01284 757783 e-mail:

AWAAZ FM are supporting the campaign to raise the number of BME organ donors (Sept 2012)


People from Black and minority ethnic communities are disproportionately affected by inequalities in transplant services in the UK. They are at greater risk of developing organ failure, less likely to be organ donors and wait longer for transplants. Download information about the campaign here.

OLGA newsletter (Sept 2012)


OLGA (Older Lesbian Gay Bisexual and Trans Association have just published their 17th newsletter which is available to download from there web-site here. OLGA will be pleased to supply hard copies of the newsletter upon request.

Vegetarian for Life have recently made a video about the benefits of a vegetarian diet and the importance of nutrition for vegetarian people who are in receipt of care services (July 2012)

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To view the video click on the link here

Thurrock Over Fifties Forum (TOFF’s) are hosting a conference exploring health and care matters for over 50’s in November 2012 (July 2012)

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